I think getting an EDS diagnosis - or any chronic diagnosis comes with a solid pair of balls attached. It has to or it will eat you alive. You have to fight for everything - insurance coverage, medication, diagnosis, and apparently the ability to qualify for graduation! Thank you God Almighty that I have some good advisers that worked with me at my school. I'm nearing the end of my time spent in classes and nearing my internship. Currently the qualifications for getting a Recreation degree with a TR concentration require a 40 hour per week internship. They are aware of only one exception ever being made and it wasn't for a TR student or for disability reasons. I spent the past week or so figuring out if I spent all of this time and money to not be able to get my degree. They decided to make an exception to the rule so that I can go 20 hour weeks but over double the time span. I also had to call the testing company to figure out if I would even qualify for the certification afterwords. I suppose this is a victory but I feel as though it shouldn't have to be. I shouldn't have to fight tooth and bone for every small thing in life. It amazes me how little the world knows. Obviously they can't be informed on every disability out there but at least be accommodating to an extent. Show some love or compassion instead of being intimidated or stern.
If you want to help in this fight for EDS-ers in the US, sign the petition to help it become a Nationally recognized disability...
https://petitions.whitehouse.gov/petition/recognize-ehlers-danlos-syndrome-create-awareness-have-eds-recognized-disability/FFWRj66T
Stay blessed.
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