Wednesday, January 2, 2013

Gifts for EDS-ers

Okay, so Christmas just passed us (and this post might have been more relevent about a month ago) but it made me start thinking of the people who shop for EDS-ers. This might seem easy until you have to actually shop for one.

Good Ideas!
  • Braces - If you are close with an EDS-er, ask the person if they currently need any braces. People with EDS often have support braces for nearly every part of their body but they can run up a hefty bill. It might come as a surprise but this might be an EDS-ers favorite gift of the season.
  • A Donation - There currently isn't much known about our condition so making a donation to EDNF (the Ehlers-Danlos National Foundation) would not only benefit us in the long run but would also benefit our friends and family.
  • Pampering Items - Basically anything you might find at Bath and Body Works would be practical and boost our spirits. Body soaps, bath salts, or bath bubbles will be nice on days when we just ache all over and basically spend the day in a hot bath. Lotions are good when need to rub out our muscles or have the winter dry skin. And let's be real, what girl doesn't like a little smell-good.
  • A really soft blanket - When you're sore, having a really soft blanket to wrap up in is like having a big ol' hug from your best friend. 
  • Gift cards to do something fun! -  Yes, we aren't always the most reliable friends but we do enjoy the time we get to spend with you! Slip a gift card into a card and write something like "hey! I'd love for you to be my date to (insert movie title) some time this week!" That way they can still enjoy friend time but with a bit more flexibility in the schedule.
Bad Ideas :(
  • A Massage - This might seem like a wonderful idea but many of us already go to therapeutic massages on a regular basis - if we can tolerate them at all. I have heard people that swear by them and people that were made worse by them. I would steer clear of them as a gift just in case.
  • Video games, knitting tools... - Everyone with EDS is different so some of us can do activities with fine motor movement of the hands. However, some of us can't. If you notice that the person you are buying for has pain with things like writing or typing, try to avoid things that require repetitive small movement of the fingers.
  • Tickets to a specific event - As I've previously mentioned, EDS is a very unpredictable condition. I could be chipper and walking up a flight of stairs one hour and be on the couch exhausted with a dislocated hip the next. That makes making plans for a specific date and time difficult and frustrating. There's nothing more infuriating to me than when I know I should be having the time of my life but either can't enjoy it or had to skip it altogether. 


    *If you would like to add to this list please leave a comment :)

4 comments:

  1. Nice blog, Stephanie, and great suggestions.

    As far as gifts go: for pampering/therapeutic items: Epsom salts, and (perhaps for ladies only?) scented Epsom salts, like lavender. (Better first make sure that the EDSer doesn't have some type of allergy.

    Restaurant gift cards! Any day I don't have to cook is a good day, and a gift card for a restaurant that delivers is even better!

    Packs of KT tape (kttape.com) Love this stuff so much, that I broke down and just bought a giant roll of it. (Taping directions are included, and you can also search for taping videos.

    A Kindle, if you don't already have one. Lighter-weight than a book!

    Electric throw blanket--love the heating feature

    Thermacare. I actually try to keep a box of each type at home, and then replace them as needed. I even pack a couple of them when I travel (couple packets, not couple of boxes!).

    Thermophore moist heating pad. REALLY want one of these, but don't have one yet.

    Thanks for allowing additional suggestions!

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    1. Of course! :) I want this to be a resource for EDS-ers and their supporters alike. In order for it to be as useful as possible, I want everyone to be able to put in their 2 cents :)

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  2. Replies
    1. Yes, like fuzzy socks :)
      Everyone, meet one of my best supports, Victoria!

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