One of the "fun" things about EDS is that it rarely ends with just that diagnosis. Since EDS is a collagen disorder it it effects parts of the entire body. For me, it started with the EDS. That led to a POTS diagnosis. Often, those two go hand in hand. POTS means that depending on the position of your body (ex. going from sitting to standing) your blood pressure will drop and your heart rate will rise - often this results in a dizzy spell or passing out. Well the cardiologist that diagnosed me with that forwarded me to an electrophysiologist because my heart rate was so high. Well, that doctor had me wear an event monitor for a couple weeks. It's super embarrassing to have wires coming out of your shirt and a little machine on your hip that occasionally beeps. Nevertheless, he told me that my heart rate never dropped below 100 and I had 3 episodes where it was really high so he diagnosed me with Inappropriate Sinus Tachycardia. Sounds funny, right? My heart is inappropriate. hah. :) But the options for that are live with it (sucky), try natural methods of relaxing the body such as yoga (kinda cool), and surgery that could leave me with a pace maker (I vote 'no'). Well this led to looking into Dysautonomia. We'll see what the doctor has to say about that one.
If this sounds like a whole lot of doctors and diagnoses you're right; however, this is far from abnormal for someone with a disorder like EDS. When it's something that effects you're entire body there's always going to be something new going on. That lovely comic pictures is why I believe we should not be medic zebras but medical aliens. It says "I must admit, yours is one of the most baffling cases I've ever seen". hah :) At least with zebras, once your realize it's not a horse, people recognize the zebra. With these kind of diagnoses, even the doctors tell you they don't understand. Also, they probe you like an alien because they are fascinated.
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